This post was sponsored by Walgreens Cystic Fibrosis Services as part of an Influencer Activation for Influence Central. All thoughts and opinions are my own.
After learning our son has Cystic Fibrosis, a life-shortening genetic disease, it seemed as if the world was crumbling around us. I wondered why my sweet, innocent baby had to have something so terrible happening inside his tiny body. I worried that I would outlive him and not be able to bear the heartache of such a loss. I cried and screamed in anger for having to deal with such devastating news. But, after living our lives in fear and sadness for a few weeks we realized that we could not continue on with that attitude. And most importantly, we could not raise our children, especially Bennett, with such a negative view of Cystic Fibrosis which is going to be a part of our daily lives regardless of how we feel about it.
We needed to change the way that we viewed our son’s diagnosis.
Finding inspiration and motivation to live happily and healthily became my new way of dealing with Cystic Fibrosis. It has helped to read positive messages, quotes, and stories. Connecting with other parents dealing with the same situations means we can support each other in times of stress and celebrate little victories that only CF families would understand.
One way that I will try to inspire and motivate Bennett to take the very best care of his health is by creating a positive environment in our home with not only how we view CF but also how we approach life in general. I’ve decorated his nursery with short but powerful messages that will encourage him to live life to the fullest.
“Kid, You’ll Move Mountains” (Dr. Seuss), “Dream Big”, and “Strong & Brave” adorn the walls and I hope that by reading positive messages on a daily basis (of course once he learns to read!) will motivate him to keep up with his treatments because if he takes care of his health then I believe in him that he can do whatever will make him happy.
“Just Breathe” is a favorite among the CF Community. As the disease progresses, respiratory function declines and some patients experience great difficulty with breathing which something that healthy people don’t even need to think about. Though it is a short and simple phrase it carries great meaning.
“We can’t direct the wind, but we can adjust the sails.” has been a favorite quote of mine since I was in high school. When I am faced with situations that are unchangeable and feel unfair I need to remind myself of these words. We can’t change the fact that Bennett has Cystic Fibrosis but we can and will do everything we can to keep him at his healthiest and taking advantage of all of the wonderful things that life has to offer.
“Take care of your body. It’s the only place you have to live.” (Jim Rohn) As someone living without a chronic disease I have taken my health for granted because it is not something that plagues me on a daily basis. Now that our son will have to take extra steps and spend countless hours to achieve his best state of health it has really opened my eyes up to our lifestyle and how we can all live healthier. Increasing physical activity, eating healthier, and keeping our minds positive is how we will take care of our bodies. Though it won’t be easy for Bennett I hope that by setting a good example it can motivate him to live a healthy lifestyle that will help to ease his CF symptoms.
Staying healthy with Cystic Fibrosis may be a challenge but by remaining connected with the CF community and having resources like the Walgreens CF Champions Program: “Navigating The Journey, Together”, we will face this challenge head on. As a caregiver to a child with a chronic disease I will do my very best to encourage positive thinking and healthy living.